This outstanding resource is produced in conjunction with the National Organization for Rare Disorders, with information never before available in one directory. It provides comprehensive and needed access to important information on over 1,000 rare disorders, including Cancers, Muscular, Genetic and Blood Disorders and more. Each description is followed by information on Organizations, Publications and Government Agencies involved with the disorder. For quick, easy to access information, this directory contains two indexes: Entry Name Index and Acronym/Keyword Index. Approximately 20 million or 1 in every 12 Americans are affected with a rare disorder, so this directory serves a surprisingly wide range of the population. Already a success in public and academic libraries, as well as in medical reference libraries.